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Cancer Websites


In prior sections, I have given you a number of web sites you can refer to using the World Wide Web. I urge you to try to do this in harmony with your physician and be critical about what you read. Nonetheless, everything you could want is out there, and the list presented here is fairly comprehensive regarding reputable sources for any information I have ever imagined a need for, but it is by no means complete. You will notice I have repeated some of the clinical trials sites for emphasis.

• CALGB Cancer and Leukemia Group B

www.calgb.uchicago.edu

• ECOG Eastern Cooperative Oncology Group

ecog.dfci.Harvard.edu

 NCCTG North Central Cancer Treatment Group

ncctg.mayo.edu

• NSABP National Surgical Adjuvant Breast and Bowel Project

www.nsabp.pitt.edu

• POG Pediatric Oncology Group

www.pog.ufl.edu

• RTOG Radiation Therapy Oncology Group

www.rtog.org

• Southwest Oncology Group

www.swog.saci.org

• European Organisation for Research and Treatment of Cancer

www.eortc.be

• National Cancer Institute of Canada Clinical Trial Group

www.ctg.queensu.ca

• National Cancer Institute

http://rex.nci.gov

• American Society of Clinical Oncology

www.plwc.org

• American Society of Clinical Oncology

www.asco.org

• American Cancer Society

www.cancer.org

• CancerGuide: Steve Dunn’s Cancer Information Page

www.cancerguide.org

• Cancer News on the Net

www.cancernews.com

• Cancernet

http://cancernet.nci.nih.gov

• CanSearch

www.cansearch.org

• Huntsman Cancer Info Service

www.hci.utah.edu

• Medicine Online

www.meds.com

• New York Online Access to Health

www.noahhealth.org

• Oncolink

http://oncolink.upenn.edu

• University of Texas MD Anderson Cancer Center

http://utmdacc.uth.tmc.edu

• MD Anderson Cancer Center

http://www.mdanderson.org

• Memorial Sloan Kettering Cancer Center

http://www.mskcc.org

The National Cancer Institute has many materials to help you understand your medications and diagnosis. The US government sponsors this. The NCI coordinates the government’s cancer research program and provides information in both English and Spanish for patients, the public, and the media. Information is available about advances in cancer treatment and research, ongoing clinical trials, specific types of trials (many on campus), specific types of cancer, and managing adverse effects of treatments. Cancernet, PDQ, and the Cancer Information Service are all provided by the NCI. They publish many monographs and booklets, among which are Chemotherapy and You and Helping Yourself During Chemotherapy.

The American Society of Clinical Oncology has a number of new resources available for practitioners to share with patients. As the leading professional society for professionals who treat people with cancer, ASCO is committed to providing patients and their families with information that is accurate, timely, and oncologist approved. Some of their materials are The Cancer Handbook, second edition; the Cancer Advances annual meeting newsletter; ASCO Patient Guide: Understanding Tumor Markers For Breast and Colon Cancers; ASCO Technology assessment: Aromatase Inhibitors for Early Breast Cancer; and “People Living with Cancer,” which is the new patient-education website from ASCO. Th is offers easy-to-understand cancer information that is accurate, up-to-date, and oncologist approved. There are sections devoted to cancer types, clinical trials, symptom management, cancer news, family and friends, coping, discussions, and much more.

The American Cancer Society has many local programs to support their patients with cancer and their patients’ families. They will connect you with the office nearest you. The American Cancer Society is a

voluntary organization with national and local offices that may be able to provide patient services, including transportation, lodging, cancer information, support groups, and oncology camps. They have information and catalogs for cancer-related products, such as hats, turbans, hairpieces, wigs, prostheses, and breast forms. They lobby for cancer-prevention legislation and conduct education and awareness programs, such as Man to Man (prostate cancer), Reach to Recovery (breast cancer), and “Look Good Feel Better.”

Steve Dunn’s website is maintained by a cancer survivor and provides information specifically for patients. It tells patients how to find information, the pros and cons of researching their cancer, when and why to get a second opinion, and how to maintain a positive outlook. Alternative and unconventional therapies are discussed in a practical, balanced manner, and patients are cautioned to make careful decisions.

A nuclear medicine physician who works with cancer patients edits Cancer News on the Net. It can provide articles on many forms of cancer.

CancerNet is an international online service provided by the

National Cancer Institute. This information is for patients, families, the public, health-care providers, and researchers. It covers cancer detection, prevention, treatment, and research. Users may research CancerLit, a bibliographic gold mine of a database that indexes cancer-related articles from the medical literature. It does not provide articles but helps users decide which will be the most useful. PDQ, the NCI’s comprehensive cancer database, can be accessed from CancerNet.

Cansearch is a site sponsored by the National Coalition for Cancer Survivorship for both survivors and patients. It provides information about meetings and events, survivorship programs, and a systematic guide to cancer resources on the Internet.

Huntsman Cancer Institute at the University of Utah provides patients and providers with information about cancer detection, prevention, and treatment. Referral to local programs is also provided.

Medicine Online is sponsored by Ultitech and funded by Glaxo-Wellcome and Pharmacia. It provides information, education, the Daily Oncology News Digest, discussion groups, and meeting reports.

New York Online Access to Health is provided by the City University of New York and has information for both patients and providers on cancer and other diseases.

OncoLink is sponsored by the University of Pennsylvania and contains information for patients and providers about specific diseases, medical specialties related to cancer treatment, chemotherapy, psychosocial support, clinical trials, financial issues, international cancer meetings, and other topics.

The University of Texas MD Anderson Cancer Center, which is an enormous institution, provides information about cancer prevention and detection, clinical trials, and basic information about cancer and its treatment.

Another completely different and more personal approach is offered by radio and is called The Group Room: A Worldwide Virtual Support Group. It airs every Sunday from 4–6 p.m. eastern time and can be reached at 1-800-GRP-ROOM (1-800-477-7666). For a list of radio stations that carry The Group Room, or to listen to the Internet broadcast, please visit www.vitaloptions.org.

Information is available from many sources about specific types of cancer. Patients may wish to join cancer-specific support groups or find vendors, such as vendors for prostheses for bone cancer or breast cancer, or ostomy bags. The following is a good sampling of cancer-specific resources available by telephone or the web. Remember, these may not be as reliable or accurate as those sponsored by the NCI or major institutions.

 

• American Brain Tumor Association

1-800-886-2282 http://www.abta.org

• Brain Tumor Society

1-800-770-8287 http://www.tbts.org

• Cure for Lymphoma Foundation

1-800-235-6848 http://www.cfl.org

• International Myeloma Foundation

1-800-452-2873 http://www.myeloma.org

• Leukemia and Lymphoma Society

1-800-955-4572 http://www.leukemia.org

• National All Br Ca Org

1-888-806-2226 http://www.nabco.org

• National Hospice Organization

1-703-243-5900 http://www.nhpco.org/body.cfm

• National Ovarian Cancer Coalition

1-888-682-7246 http://www.ovarian.org

• Support for People with Oral and Head and Neck Cancer

1-800-377-0928 http://www.spohnc.org

• Y-ME National Breast Cancer Organization

1-800-221-2141 http://www.y-me.org

Sources of National Cancer Institute Information

Cancer Information Service:

Toll-free: 1-800-4-CANCER (1-800-422-6237)

TT Y (for deaf and hard of hearing callers): 1-800-332-8615

NCI Online:

Use http://cancer.gov to reach NCI’s website.

LiveHelp:

LiveHelp link on the NCI’s website.